Crystal Balls

crystal ball

The September after Noah died, on what would’ve been his second birthday, we found ourselves at the Pennsylvania Renaissance Faire. How we did it, I don’t know. I remember waking up in the B&B we stayed in and walking out onto the little deck. We quietly said “happy birthday Noah” into the wind.

The faire was a nice time mixed in with some crippling moments of little boys running around dressed in their pirate outfits. We scanned the crowd for one that looked like Noah. We’d always see one little dark haired, blue eyed, chubby cheeked, stocky bodied boy with the sweetest grin. We would usually spot this doppelganger at the same time and give each other a look. “Look, a little Noah,” and we would just watch him for a few seconds. It was a hard punch in the gut and a sweet stroke on the cheek simultaneously.

We were in those early days of desperation. We looked for signs everywhere we went. We lived for signs. We lived one sign to the next. Souveniers with his name popping up in gift shops, dragonflies buzzing around, others that only made sense to us. We became curious about a path we hadn’t tripped down yet. The fortune teller. The psychic. The gypsy. Could someone really tell us if he was ok? If he can hear us or see us? If we would ever have a child again?

As I tried on a brocade corset, because that’s what you do at a renaissance faire, we chatted with the owner of Ye Olde Corset Shoppe.

“Are any of those psychics over there for real?” Hal asked as he gestured towards  “Mystic Row” or some cheese-filled name like that.

“Actually, there’s one guy that kinda blew my wife’s mind,” Corset Guy said. He told us not to bother with the four others sitting in their tents. That this one guy was the real deal.

We were so afraid to start down this path. I didn’t want false hope. I didn’t want to piss off God. We were really clinging to our Judaism. We were going to temple, reading Jewish books for any kind of comfort we could find. We decided we would try it. Just this once.

We waited our turn at the tent of Robert Moyer (RM). He looked a lot like The Ghost from The Ghost and Mrs. Muir tv show. He wore a Carnac the Magnificent-like hat, a white puffy shirt and gold rings. There was a little sign of his services. Palm reading, tarot cards, and runes. Hal went first. He sat down in the simple chair and I stood behind him. RM bowed his head and said a little benediction as he held Hal’s hands in his. My rememberance of it all is a little spotty but I remember the most important revelations. We did the tarot and palm reading combo. He started by telling Hal he had two children. Hal said no. RM was confused. RM laid out the tarot cards. There was a card that showed a flaming tower with people falling off, waving their arms and screaming. Chaos. RM said something traumatic happened this past summer. We both inhaled. RM  asked again about children and Hal still said no. RM seemed like he couldn’t continue. Whatever it was had him halted in his thoughts. RM told us we’ve been together in three past lives. It started to feel very intense and real and important. RM again asked about children.

Hal and I looked at each other. “Tell him,” I said. I felt very strongly about not saying a word because I really didn’t buy all this psychic stuff to start with. I wanted to really see what RM could pick up on.

“Tell him?” Hal confirmed.

“Yes.”

RM looked at first confused and then as we told him what happened to Noah, tears were in his eyes. He was having a hard time holding them back. He was saying how sorry he was and he just knew there was something and how awful. It began to feel more like a therapy session than a parlor game or fortune teller trick. He told us we had lost children each time we were married in our past lives. Once by sickness, once by water, once by freak accident of some sort. Noah’s death was predestined. It was unavoidable. Somehow it would’ve happened. I found this comforting at the moment and six years later, I still want to believe this.

Next, I decided to get my tarot reading. We still hadn’t told RM too much else. RM repeated the benediction, holding my hands.

“Your mother is standing behind you. She is right there. Clear as day.” I hadn’t told RM my mother had died 3 months before Noah. I told RM she recently died also and he assured me again she was close by.

RM asked what my question for him was. “Will we have a child again?” I asked.

I was terrified of the answer and I think we all knew that we were going to believe whatever RM told us. This was the moment of desperation. I think Hal and I knew Noah was ok. Wherever, however, whoever…that our Judaism gave us that comfort. But we needed to know the future. It was the only way we could go on with the present.

RM’s word’s were cryptic. I think even he was a little confused by them. He said we would have another child. Just one more. I would give birth. But there would be more to it.  He’s not sure exactly how it would happen but it would. We were confused and asked for assurance again. I guess in retrospect it gave us the courage and determination to enter the fertility world we never thought we’d have to enter. After all, RM said it would happen.

Through the next two and a half years until Miriam was born, we would sometimes say to each other, “remember what the psychic said.” We never went to another psychic as much as we were tempted. Not only did we not have the money to spare, but what if someone told us something completely different? It was not a path we wanted to go down. In our travels, we came across a few support groups that had some opportunistic psychics that were looking to communicate with your dead child for you. It was so disturbing. I’m sure most of those parents were at their lowest, wanting to hear anything. I know that for a fact because, some days, we are not so far away from being those parents again too. Even six years later, something can trigger those earliest days.

Last year we went back to the Renaissance Faire. With Miriam. And there he was. RM was in his tent. Puffy shirt, Carnak the Magnificent hat, gold rings. We had to wait quite a while. He was having a very long reading with two ladies. Lots of discussion and questions, it seemed. We watched from the dirt path and thought about how we would explain all that’s happened. Would RM remember us? Hal was finally able to get his turn to quickly tell him our news. I waited on the path with Miriam in her stroller. RM was even more hard of hearing than he was in 2010. Hal basically yelled into his ear amid royal trumpets sounding and jousts nearby, “You were right!” Hal gestured to me and Miriam and I waved. RM looked thrilled and surprised.  I saw RM and Hal shake hands and we mentally crossed that important thank you off our list.

Was RM the real deal? I still don’t know.  We have this image of us being married in three different lifetimes. Beshert is the Hebrew word… “the one intended for you”.  We have the theory that there was nothing we could do to avoid losing our child. That’s comforting in a tragic way. RM gave us the gift of hope. Is that a psychic ability? Doubtful. All of us have the power to give hope and validation to others. And you don’t even need a puffy shirt.

Permission Slip

Trauma triggers are kinda like being in a live action video game. You trot along through buildings and streets, sometimes with peppy theme music playing in your head. Leaping over obstacles, mentally scoring points and winning prizes. Suddenly the trigger appears and it sends you frantically running backwards and erratically all over your inner game screen. And oftentimes no one can even see you in that frantic state. You look perfectly jolly and peppy to them. Well, I’m here to say I SEE YOU. And it’s ok. Run backwards and sideways all you need. Hit restart as much as you need. And I hope someday you get enough points to win the prize you want.

When I see an image of water on television, especially if filmed from underneath the surface, my throat closes, my heart races and a cold sweat starts almost immediately. I turn my head to the side  and wait for the image to be gone. Commercials, scenes in movies, everywhere. Like in “Pee Wee’s Big Adventure” after his bike was stolen and all he saw were people on bikes. Big bikes, little bikes, unicycles, training wheels, bicycles built for two. They were everywhere. And that’s what the summer months are like for me. I smile and nod at people telling me about the fun their kids had in the pool that day -as they buy their vodka for the night. I describe wine as perfect for poolside. I’m an outsider now to the wonderful world of water. I respect it and fear it.

I remember in the earlier years after Noah died, not even being able to walk over a little foot bridge at the park with a bubbling brook underneath it. It all created this intense inhale. Even as I write, I’m holding my breath. I remember in the early days, putting my face under the shower and seeing how long I could handle the barrage of water. Up my nose, in my mouth. I hate it. I recall taking a bath within the first few weeks after. The sound of the filling tub with no Noah to come running to it , stripping clothes as he ran. Just the tub and me. I remember putting my head under water, trying to see how it felt. I haven’t taken a bath since.

It’s ok to not frolic in water. It really is. I wish the reason was just that I didn’t want to get my hair wet or I’m allergic to chlorine. My reason is purely emotional. Valid? Yes. Because it’s mine. And whatever phobia, anxiety, or trigger you’re experiencing in this video game of our minds-well, that’s valid too. And ok. Ease the anxiety by being ok with not being ok. I give you permission.

Beauty Pageant

I have these days sometimes. Days when everyone looks beautiful to me. In all their imperfections, they just look beautiful. Do you know what I mean? The clothes they chose that day, their hairstyles, the look on their faces. Their skin, their eyes, their expressions. I choose a few to look at. I wonder what they’ll look like in 10 years. Much different? 10 years is not a long time anymore. Last night we lit a yahrtzeit candle for Noah. Six years since it happened. We light it together. Last night we didn’t have matches. We used one of those Bic long lighter thingies. I realized at that moment I prefer the sound of the match strike. I need that sound. How Noah has changed me. First by being here. Then by not being here. Maybe I substitute intense beauty for intense pain. But it seems to work. Then illusion is real and fake simultaneously.

Can Ya’ Hear Me Now?

20160717_142044As I signed Miriam out of school the other day, she made sure to say goodbye to the director, Miss Cindy sitting nearby. Suddenly, with great urgency, this 3 and 1/2 year old powerhouse also recounted her weekend adventure to her.

“Bye Miss Cindy! I rode on an elephant and a train and a merry-go-round and I put my feet in the sand and I went on the potty but it was too loud and I cried!”

When Miss Cindy’s head stopped spinning with all this information that was just adorably spewed upon her, she simply replied with a smile and a “Wow!”

That’s all Miriam wanted to hear. Just to be acknowledged. Just to share her thoughts and excitement. The accomplishment of overcoming the fear of the loudly echoing auto-flushing toilet. Well, she didn’t really overcome it. I had to hold her above the toilet as she screamed her head off amidst bikini clad teens and wrinkled NJ grandmas who refuse to give up their time in the sun. The sand was also a new texture for her and  we used the “one toe at a time” technique to battle the fear of the unknown. Within minutes she was running barefoot and fancy free. A few minutes more passed and she was removing her pants and underwear. Perhaps she’s been listening in on my late night binge watching of Naked and Afraid?

Does that urgent need to share our excitement translate into our adult lives? What if I just blurted out “Miriam finally made a poop after 3 days! That amoxicillin really constipated her! It was huge too! Like a man poop! But I’m so happy she finally went!” to the next customer that asks me for a Sancerre recommendation.

Or maybe I’ll need to tell the Parkway toll collector about the tube of Pringles I’m secretly eating in the car and how I actually wanted Bugles but the Pringles were closer to the checkout lane and I didn’t want to lose my place. Would he/she reply with a “Wow!” like Miss Cindy or maybe tell me that he/she also loves Pringles and then points to a tube next to their register. We would laugh until the cars behind us started beeping.  I would pull away feeling a little more connected with this world.

I have this beautiful friend, Kristin. She made her place in history one night many years ago with simply blurting out what she was thinking. She didn’t need to wait for the conversation to shift towards whatever she was thinking. She just said it and we took it from there. Twenty five years later, I still remember the night Kristin just blurted out “My cat’s fat!”

How much more interesting and open and entertaining our world would be if there were more Kristins. And more Miriams. And a lot of Miss Cindy’s to simply smile and say “wow!”

 

 

Nightlite

Cousin Alice sent a nightlite.

Flash forward to midnight feedings

Paranoid, checking breathing

Quiet tv playing in the background

Rocking chair at full speed.

She really will be here. Miriam Phoenix.

——————————————————-

Cousin Alice sent a nightlite.

Flashback to clinging to dragonfly signs from Noah

It gave us peace for just a few moments when they appeared.

Dragonflies swooping and levitating still.

We believe it’s our boy visiting. We really do.


Cousin Alice sent a nightlite.

Awake at 1am 2am 3am

Just awake.

Opening the refrigerator over and over and over

Waiting for the perfect snack to magically appear.

Pretty glow of the kitchen makes this life feel like a movie

Plot unfolding as I watch.

————————————————————————-Cousin Alice sent a nightlite.

This glow will carry on as long as my days

And light the nights of sweet Miriam Phoenix

as she grows to watch her movie plot unfold.

Cousin Alice sent a nightlite.14683836419991013541717

 

 

 

 

Yin Yang Lesson

It’s all about ‘balance’ they say. Today while ringing up a regular customer, he took a lottery ticket out of his wallet to get to his cash. We chatted about megamillions and he said “I’ll tell you what. If I win, I’ll give you a million so you can stay home with your little girl.” I teared up of course and was so touched by this offer even though most likely it will never come to fruition.
A few minutes later, I ran to the bathroom, still thinking about his kind words. As I finished up with my potty break, the universe balanced itself yet again with the gift of no toilet paper on the wall.
#balance
#yinyang
#kindnessmatters
#sodoestoiletpaper

Now is the Summer of Our Discontent

On the way to work this morning, AC/DC’s Highway to Hell playing on the radio guided me into the asphalt parking lot. Hell? No, I wouldn’t say that. I’ve been to Hell. I still visit for short periods every day but the heat has lessened a little. Most days. But some days it’s just the perfect storm of working a less than rewarding retail job, not enough sleep, not enough awake, financial problems, aches and pains,  guilt and frustration, and occasionally a frizzy hair day and the heat becomes worse than the hot flashes of the perimenopause I’ve entered.

I absorb the horrors on the news and bad news from friends and I feel the heat rise. I want to hide in our humble apartment. Chain the door, take off my pants, cuddle up together on the couch with happy tears. We put it back together as best we could. It’ll never be the same. I’m always going to be broken. I’m always going to be scared. But the heat goes on the back burner and we all keep going. Not just me. Not just bereaved parents. Not even the ones who seem to have it all together. (Pssst! Guess what? They don’t.)

We all keep going.

 

 

Picture Perfect

I found a picture frame I’d never filled while moving furniture and knick-knacks around the other day. It’s therapeutic. Like moving thoughts and emotions around in my head to get some harmony, feng shui, balance, sanity, or whatever you want to call it. The red couch is as far against the radiator as it can go. The Ikea cube shaped thing that holds books, toys, art supplies, cd’s, and dvd’s is filled but neat and symmetrical. It’s all lived in and homey but with some sort of order.

So I took this pink and white cameo-shaped picture frame and went searching for a photo. I found a picture of Miriam, maybe a year and a half ago, playing catch with her teacher. Her big smile, the ball as big as Miriam and just a glimpse of the teacher’s adult hands on the ball. I grabbed the scissor and began to cut the photo to fit. Suddenly I froze. What was I doing!? I can’t cut a photograph! Instantly, confusion and mild panic set in. I would never cut a photo of Noah. It’s all we have of him. How could I cut a photo of Miriam? What if…? That fear and shock never goes away. The actualization that the unthinkable has happened.

Fat Ladies Singing

There’s a lady in front of me right now. She’s wearing a necklace of two sparkly owls sitting on a branch. I told her I liked her necklace and we got into a lighthearted conversation. She is known as the “owl lady” and I told her I was always known as the “monkey lady” in my crowd. My father’s girlfriend is known as the “turtle lady” and my friend Marybeth was always the “pig lady”.

We become associated with certain colors, animals, items, and people instantly think of us when they see them. On the merry-go-round the other day, I was holding onto Miriam riding her prized zebra while trying to get a photo of the emu for my emu friend Deb. I have another friend that always thinks of me when my favorite extra offensive curse word is said. There’s a lady at work who loses her mind and squeals like an 8 year old girl when she sees anything shaped like a flip flop. We all know a “purple girl” like my brother’s ex-wife and I had a boyfriend many years ago who was a “green guy”. His room, his car, his jacket, his rug, his coffee mug-all bright green.

My mother’s flower was the peony. My cousin Arlene has a snowman obsession. My husband loves anything Charlie Chaplin. Stacy loves giraffes. Jodi and Elana are forever linked as my “french fry friends” and I won’t even get started on my brother and his baked potatoes.

I am also known as the lady whose son died. And who knows what else that entails. I don’t want to know. Five or so years ago, my friend Bob Magee wrote to me, as I went through fertility and grief struggles, these amazing words. “Keep going. I don’t want losing Noah to be the end of your story. This can’t be the end of your story.”

Maybe we should start ending fairytales with “Not The End” because it’s never really the end, is it?  Until it actually is. And then it may not be. Change your label. Change your story. Change your animal. Change your color.

 

 

Backseat

I got into my car last night. It was 9:30pm. I was by myself. Hal was upstairs with a Play-Doh occupied Miriam. I was running out for tin foil, bubbles, cat food, and baby wipes. My mind flashed back to the first time I went out by myself after Noah died. I don’t remember where I was going but I vividly remember that empty backseat staring back at me in the rear view mirror.

There is this urgency I live with. It’s a feeling of near panic- making sure Miriam is safe. It’s understandable and mostly manageable. But this urgency creeps out into my daily life in other ways. This urgency to share my stories,  big and small. To record somehow that I am here. And for when I’m no longer here. It’s not about ego or self-importance. It’s about reaching out for help and inspiration. It’s about laughing ’til you cry and crying ’til you laugh. I’ve always thought that if the energy of all our stories could be harnessed into powering some Rube Goldberg-like maze, it would be so powerful that this world may very well implode.

This urgency gets stronger in rough times. Unhappy days at work, money problems, health scares, sad news from people I love. But this urgency has become my friend too. It’s almost got a face in my mind. And it looks like me! But I remember a saying from art school …”every great artist is always really drawing themselves.”